Zeke

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Zeke in hospitalIf being the middle child means being funny, outgoing and up for anything, then that's 10-year-old Zeke. He gets on well with his four brothers and sisters and loves playing outside.

Late last year Zeke had a fall from his bike while out riding. He had a restless night's sleep with tummy pain, so the following morning dad Jim took him to the GP just to check it was nothing serious.

As the day went on, Zeke became more and more sick. Worried at his worsening condition, Jim and mum Kristy decided to take him to Emergency.

Blood tests revealed abnormal enzyme levels, and Zeke was admitted for further tests. An ultrasound and CT scan showed the full extent of his internal injuries and sadly, Zeke was diagnosed with a Grade 3 Pancreatic transection. This is very rare in children, and Kristy said the shock was overwhelming.

"It turned our world upside down. So many unknowns, particularly the uncertainty regarding Zeke's ongoing treatment and prognosis," she said.

Zeke was admitted to Canberra Hospital where he remained for 10 weeks to undergo surgery and treatment. The days were long and stressful, and Zeke missed his friends and family and all the things he loved doing at home.

Kristy said adjusting to their new life has been extremely difficult emotionally and financially.

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Our lifestyle now is very different; financially it has hit us hard with the added medical expenses. It's had an impact on all our kids' lives, especially when Zeke's in hospital. We never know what's going to happen next, or when we'll end up back in hospital.
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Zeke's mum, Kristy

Thankfully, amid all the pain and trauma, Zeke has found a place where he can be a kid again.

Whenever he's in hospital Zeke can escape to the Starlight Express Room to play games, have fun and not think about what treatment or procedure he faces next. Kristy said Captain Starlight always make Zeke feel special, and the joy they bring to him means the world to them.

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For us as parents, the Starlight Express Room is somewhere that we could let our guard down a little and to watch Zeke be a kid again.
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Zeke's mum, Kristy
Stories like these are only made possible thanks to our generous supporters. If you'd like to help make a difference for a child, you can donate below.  > Make a Donation

And when Zeke was too unwell to visit the Starlight Express Room, Captain Starlight delivered the fun to him! Zeke's face lit up whenever the Captains called in for a ward visit - especially when they brought along fellow superhero, Iron Man!

Zeke with Ironman

Captain Starlight helps the family cope with the stress and pain of hospital, and created precious moments of fun and happiness. "The Captains made us laugh and gave us time to not think about everything that was happening." Kristy said.

Kristy and Jim are so thankful to Starlight supporters for the joy and happiness they've brought to Zeke during his long, hard road. They cannot imagine how they would have got through the many months of Zeke's treatment without Starlight being there.

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There are not enough words to describe how much Starlight has impacted us. Captain Starlights are simply amazing - they always made Zeke smile and laugh, and going into the Starlight Express Room was often the highlight of his day. So, thank you from the very bottom of our hearts.
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Zeke's mum, Kristy
Stories like these are only made possible thanks to our generous supporters. If you'd like to help make a difference for a child, you can donate below.  > Make a Donation
Stories like these are only made possible thanks to our generous supporters. If you'd like to help make a difference for a child, you can donate below.
> Make a Donation

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